Organizations

When Brooke was first diagnosed with Loeys Dietz syndrome, she felt very alone. She didn’t know any other kids “like her” and had nobody her own age to talk to about her feelings about LDS. Years later, when our family attended our first LDS Conference, Brooke was able to meet, talk with, and develop wonderful friendships with other children affected by LDS. This was incredibly impactful in Brooke’s life.

With Brooke’s Voice Foundation we want to make it possible for other children suffering from LDS who do not have the financial means to travel to and attend the annual conference, to meet other children like them so they do not feel so alone.

With the help of Brooke’s Voice, The Loeys Dietz Foundation was able to award 4 individuals with scholarships this year. Two were awarded the opportunity to attend the Loeys Dietz Conference in Chicago for a weekend in July 2023. The other two recipients were given the opportunity to attend a week-long summer camp, geared towards children with medical challenges, in Atlanta at the end of July.